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FIGHT4FAITHFAMILYANDCYSTINOSIS

Musings from a mama of 4. 💜

Hi & welcome here! I’m not sure how you discovered me, but pleae, grab a cup of coffee and sit a minute, won’t you? This is my brand new blog where I hope to have space to share with you some of what I’ve learned being a mom, a medical “mama”, a wife of 23 years, & a believer.  I think we’ll have more in common than not. 💜

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Open Letter to Our Donor

There is so much to say and yet, at times, I just wish I could simply hug you. How can my words of gratitude encompass all I feel? The...

Mr Thomas

***please note this was originally written in 2019*** Unfortunately my picture is a bit fuzzy so let me take just a second to explain....

Advertise Here, Please

“Advertise Here, Please” By now, you’ve definitely seen it — the startled couple caught red-handed on the Jumbotron, all thanks to the...

The Anniversary

You didn’t know if my son was a democrat or republican. You had no idea if he was black or white or some amazing shade of brown. Did he...

The Priceless Pink Plane

The priceless plastic plane She’s mentioned it several times on the nearly 5 hour drive there and honestly a few times, even a week prior...

WWJD

WWJD … or Happy Birthday

Location Enabled

Location: Hospital If I would have glanced at Joel’s location prior to this past week & had seen that it was at the hospital, I would’ve...

The Case for Prayer

The Case for Prayer Sometimes I’m jolted back in time to a memory or a place rather abruptly. They say trauma has a way of doing that and...

The Bench

The Bench I’d suppose to a type- A person, that this would look a whole lot like a dumping ground. I’d even guess that some of my friends...

Just A Mom

You won’t remember the exact words that were exchanged or what anyone wore, necessarily… but you’ll forever remember how they made you...

But still… invite me.

I’ll probably say no, even though I want to go… but still invite me. I crave the chatter, the vibes, and honestly the food probably...

Uncelebrated Race

In light of our very BIG weekend dropping off Jonah at his new college, today I MUST share about Joel. At 19, he is preparing to graduate...

Homecoming, 100 years in the making

Worrying about my fake tooth falling out (I recently had the dentist begin work Wednesday on a tooth, which ironically I originally...

Transplant Day

June 8, 2018 …. A date forever etched in both my husband’s and my mind. We pulled nto the UF Health Shands Children's Hospital parking...

Returned Treasures

I swore I wouldn’t be the bearer of trinkets and treasures and tchotchkes when I was young. I swore mostly because my Mom was indeed the...

They Played with Dolls

It all started with a simple statement from her. Sort of like a command as most of hers are. One that, honestly I would have normally...

The Rare (Car) Ride

And although I knew I had to apologize, I wasn’t entirely certain how he would hear it. Would he hear excuses?

The “Weekender”

The "Weekender” The other evening, I was lying in bed while looking through old photos on my phone. One in particular stood out. It...

The Last Visit

I have nothing to commemorate this day. I remembered to take zero pictures. I brought them nothing. No thoughtful, heartfelt note, no...

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ABOUT ME

Thoughts. Experiences. Inspiration.

I’m so glad you’ve arrived. Fight4faithfamilyandcystinosis is where I share with you what interests me most, sparking your excitement so that you can nurture your own passions and projects. I hope you enjoy my site and all of the unique content I create. We all need something to motivate us. Take a look around; perhaps you’ll discover what exhilarates you. Are you ready to be inspired?

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